August 14, 2011

Sam's scans were good and we were able to come home yesterday. She was still in pain so they sent her home with pain meds. She slept most of yesterday which was good. Last night when she woke up she was more like herself until she had a sudden scream of pain and got really upset. When she gets upset her whole head turns red and I am sure the pressure builds up and it makes those shunts work. Well her incision sites started to show a small amount of fresh blood after that. We of course called the hospital and the doctor on call told us that might not be anything, like we thought, and just to watch her. She settled down quickly and went to sleep shortly after that. I woke her up to feed her once her pain meds were due and she ate a little again with not tons of signs of pain. Then when the next feeding and dose of pain meds were due, she woke up crying when I was changing her diaper I noticed she was warm. Travis took her temp and she had a low grade fever. We changed her clothes to another outfit while feeding her and it did come down. Not sure if she had just gotten too hot in the other outfit while sleeping or the pain meds started to work. She has not been eating great. She has only had about 3/4 to 1/2 of what she normally eats and she goes a longer time in between feedings than normal. All of this could be the way she is healing but it puts us on edge because we have been down the road of shunt infections before and it is not a road we want to travel again. Please say an extra prayer that everything is okay and she will be feeling better soon. Thanks so much. Steph