Tuesday, January 4, 2011

January 4th- (24 weeks)

Today was a very long day! We were given some good news and some bad news. The good news is that they didn't find any heart problems.... PRAISE THE LORD! That was how we ended the day and we needed to go to an appointment without hearing the words.. "I am seeing something that concerns me!" A normally functioning heart is a blessing. The bad news is that they found some more problems from the MRI. The neurologist told us today that he found something else that was concerning to him. It seems that along with the fluid on the brain that he is now considering hydrocephalus which will most likely require a shunt within a short time after delivery and the Dandy Walker Malformation that was found a few weeks ago- They now see that she either has an absence or agenesis of the corpus callosum. This is the fibers that connect the two sides of the brain and it is either not there or not completely formed. The results of this could mean a range of problems that could be possible. This was the answer we were given when we were told about the dandy walker malformation which means that we won't know until she is born.  He also saw a dandy walker cyst that will most likely mean a second shunt.  He told us to prepare for a child with delays. I think that God has already been preparing our hearts for this and this is not what scares us. We know that every child is put on this earth for a purpose and that our God knows what He is doing. For me it is just that I am such a planner and I can't really do anything about any of this but wait. Waiting is hard for me. I pray daily that Samantha is as healthy as she possibly can be. When they gave us a tour of Brenner Children's Hospital today they showed us both the Neonatal ICU and the PICU as well. Their reason behind this was that there was a chance we would spend time there someday if she had trouble with her shunt. The doctor said that 50% of shunts fail within 2 years and 80% fail within 8 years. They have to be replaced or other surgeries have to take place. I just feel like I worry enough as a mother of a child who doesn't have medical problems and I am already worrying about Samantha's medical journey and she is not even here yet. The bottom line is that I need to put it in God's hands and try to not worry. I am going to try... hard. When I couldn't sleep last night I starting reading Job. It made me realize that I feel like I am in a pit but it is really just a valley. Job was in a pit!!! He made it through praising God and I know that I can too. Thank you so much for your calls, emails, and messages today. WE LOVE YOU ALL!!!

8 comments:

  1. Stephanie, God loves that sweet baby more than we will ever know. He has this in His hands, I know you hurt and I ache for you and your breaking heart, but hang on. Hang on. Love you.

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  2. Much love and prayers coming your way! You have such a strong faith and such an awesome support system! You are so right to try and put it in God's hands, but that is easier said than done. Know that you and your sweet family are loved and supported and that you, your family, your friends, and your God are all with you--sharing your fears and tears and doubts and worries. We love you bunches and will help support you through this. I will never forget how you were there for Dena, my family, and me! You are such a supporter yourself. Know that we're with you!!! LYMI! Praying for your whole family!!

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  3. Casting all your care upon him; for he careth for you. 1 Peter 5:7

    Stephanie, this verse came to my mind when I read you post. Casting, means to throw & release, but the release is the hardest part! I can't imagine what you guys must be feeling & my heart just breaks for you. However, it's just like you said...every child is put on this earth for a reason and God has a purpose. I can't help but to think of what special parents this precious baby girl is getting and what a special big sister as well. This baby will have the love and support that God intended on her having..no matter what her future holds. Not only that, God is still in control & HE is the great physician and through Him all things are possible and we will all continue praying for little Samantha (which btw...love the name!!).
    Please know that you & your family and this precious baby girl are in our prayers. Stay strong and when you feel like you just can't stand, lean on Him. His grace truly is sufficient!
    Love you!

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  4. Stephanie, as you know our struggles are/were different, but I understand how you are feeling. All I can and know how to say is that I know the Lord loves you and He loves Samantha. With Matthew, I had to get to a point where I was just praying, "Lord, your will be done." And when I truly got to the point of not just saying the words, but believing them, was I finally able to find peace. His will, ultimately, was not what we had hoped for, but it wasn't for me to decide. All I could and can do is trust.
    I know you like to plan and have everything set out, but all you can do is trust and adjust. The Lord has you and Samantha in His hands. He knows the plans He has for the both of you. Rest in Him, my dear friend. Every life is a miracle! Samantha is a beautiful miracle! *hugs* Love you guys!

    -Becky

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  5. Stephanie,
    You are SUCH a beautiful person. You and that sweet baby girl are on my mind every day. We all have a journey that we must take. I am praying for you on every step of yours.
    I love you!
    Kelly

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  6. God chose your family for Samantha. He alone knows why and will not forsake you. Praying for you daily.

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  7. LORD Almighty,
    blessed is the one who trusts in you. Psalm 84:12

    I love you guys and will continue to pray for strength for you and sweet Sammy!

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